Today is the day when college coaches across the country will wear special armbands to show their support for curing Duchenne Muscular Dystrophy. Duchenne is the most commonly diagnosed fatal disorder among children and their currently is no cure, but much hope. My friend Emily's son, Jake, has Duchenne. He is doing great, but fighting Duchenne is something he has to deal with every day of his life. Research is showing REAL strides. A new trial is about to start to try to skip the exon Jake needs to skip. It is really promising.
I think it's great that this has become an annual event.
I hope the football players across the country today take a moment to realize what a gift it is that they can be 18-22 years old and they can run down a football field playing a game they love in front of thousands of adoring fans. This is a privilege a child with Duchenne will never know unless a cure is found. Please consider using your cell phone to text the word CURE to 90999 to make a $5 donation to this worthy cause. The charge will appear on your next cell phone bill. Five dollars from you is not much, but if everyone gave $5 researchers might be catapulted to finding a real cure for this terrible disease that robs too many young boys of the chance to do what boys want to do most...run, walk, play.
Thank you!
Saturday, September 24, 2011
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